17.3.06

cyclical occurrences...

A

quick update...

Eric and I are doing OK. His primary oncologist doubled the dosage of Gleevec for him, which is the only chemo that he was still on, and increased dosage is making him quite sick to his tummy. Having this to deal with, on top of the bad news, has been tough for him. But the docs are working with us to at least manage the side effects, so he should be feeling better soon.

We had what was supposed to be our 6-month, happy-go-lucky, clean-bill-of-health appointment at Johns Hopkins yesterday. The docs there are nothing short of magical and told us that the failed transplant was in fact NOT the end of the road as we had feared, but that there were two more treatment options for Eric--the first being enrollment in a clinical trial. There is a new class of drugs called "Super Gleevecs" (none of which have FDA approval--YET)--but they're in the final stage of trials, which means that they are done testing the meds on lab rats and monkeys and are now testing them on people. The plan is to enroll Eric in one of those studies and see if the new meds can help him. The final step would be to transplant a different type of cell from his brother (the original donor)--but that would be an absolute last resort because the potential for life-threatening side effects is high. So we are keeping our fingers crossed that he'll be admitted to a clinical trial.

This just sucks. We were so eager to put this all behind us and move on wit our lives. We had begun to lay plans for the future...Eric had applied to a couple of jobs with various environmental agencies, we were looking at leaving this area for one with a lower cost of living so that we might be able to buy a little house, and I was eagerly counting the days 'til I could say goodbye to the military for good.

Now, we're right back at square one...again.

Keep your fingers (and toes) crossed for us. And if you have the time, bug your congresspersons and senators like hell to fight Bush's proposed cuts to cancer research funding and programs for the next fiscal year.

You can e-mail your state's representatives at LiveStrong, go to the main page and click on "Tell Congress NO to cuts in cancer research."

posted by amanda @ 11:26 AM

15 Comments:

At 3/17/2006 11:48:00 AM, Blogger JustRun said...

I'll be thinking of you guys.

I have bugged my reps over and over about this. I will not rest.

 
At 3/17/2006 12:14:00 PM, Anonymous Anonymous said...

sorry to hear about your setback...will keep you in my thoughts..

 
At 3/17/2006 04:49:00 PM, Blogger mipmup. said...

thanks for the update. i've been thinking of you. hang in there.

 
At 3/17/2006 05:28:00 PM, Blogger Moogie said...

Thanks for the update. I've beeing keeping y'all in my thoughts and prayers.

 
At 3/17/2006 10:29:00 PM, Blogger Sandy said...

I've not checked in for a bit and am sad to have come back to this news. I am so sorry. My prayers are with you both.

 
At 3/18/2006 12:50:00 AM, Blogger Unknown said...

I am so glad to hear you are doing *okay*, but I know this must be so difficult for you both. Thinking of you, sending good thoughts, and wishing I could help . . .

 
At 3/18/2006 12:06:00 PM, Blogger Jackie said...

Amanda, I'm so sorry that you are going through this again, but I'm hopefull that one of the new treatment options will work out for you guys.

All avaliable apendeges are crossed for you!

 
At 3/26/2006 12:01:00 PM, Anonymous Anonymous said...

Just wanted you to know I went to the site, submitted the email to my Rep, sent it out to some friends to do the same and I plan to blog on this tomorrow.

 
At 1/07/2010 06:50:00 AM, Anonymous cancer treatment center said...

Nice to hear that you are doing now. Though i caught you late, still happy to see the update.

 
At 3/09/2010 06:04:00 AM, Anonymous buy accutane said...

more. Accutane can cause severe, life-threatening birth buy accutane defects. Accutane is needed for moderate to severe acne that has failed other treatments. Ask your doctor or call

 
At 11/22/2010 05:53:00 AM, Blogger Unknown said...

hi nice posting.Ayurveda

 
At 12/22/2010 04:43:00 AM, Anonymous Medexpressrx-Christmas-Offers said...

Latest seasonal announcement from Medexpressrx is focused on seasonal offer including free additional medications and special trial packs. Since, Christmas is itself a gratifying festival, Medexpressrx makes it more pleasant by offering free medication for the privileges of the consumer.

 
At 12/22/2010 04:44:00 AM, Anonymous Viagra-Christmas-Offers said...

Medications are generally expensive and unaffordable and even taking a trial may cost you high amount. By offering ED trial pack at reasonable price the online pharmaceutical company has made it simple for users to take a trial of efficient medicaments and find the best suited one with high efficacy. However, the seasonal offer declares free ED Trial pack on order of $150 and over.

 
At 5/30/2011 04:03:00 AM, Anonymous VigRX Plus said...

Really you have done great job,There are may person searching about that now they will find enough resources by your post.I like this blog..

 
At 11/07/2020 04:21:00 AM, Blogger Cameron Ayala said...

I recently discovered Robinson buckler cure which i took few times a day which too away the herpes quickly but before then, i really tried many prescribed medicine so that i can be cured from this deadly virus but all could not work for me all my prayers to God was to wake up one faithful day and get cured from the virus because i was finding it difficult to work in my office and it was still affecting my family till i came across this Doctor, so i contacted him with doubting mindset but i could not believe it when he helped me with a positive solution and cure my herpes with his herbal cure remedies. You can also be cured if you are suffering from HERPES or any critical sickness that is giving you heartbreak and disturbing your family and job by contacting_______________________ robinsonbuckler11 {@gmail}}. com……https:// robinbuckler. com/……………❤ ❤ ❤ ❤

 

Post a Comment

» Home

My Photo
Name:
Location: NC
Contact Me


Blogs of Note



Other Great Reads

Reviews



Powered by Blogger
Design by Beccary
Support by Hope IT Works







Creative Commons License
This work is licensed under a Creative Commons 2.5 License.